Patient Registry
Participating centers
| Number of partipicating centers: | 41 |
| Number of all registered patients: | 500 |
| Number of active patients: | 442 |
Please click on a center for more information...
Austria
| Innsbruck Universitätsklinik für Pädiatrie I |
Registered patients - Total: 4 - Active: 3 |
Canada
| Edmonton Glenrose Hospital |
Registered patients - Total: 4 - Active: 4 |
| London/ Ontario Victoria Hospital |
Registered patients - Total: 2 - Active: 2 |
| Toronto The Hospital for Sick Children |
Registered patients - Total: 16 - Active: 16 |
| Vancouver BC BC Childrens Hospital |
Registered patients - Total: 17 - Active: 17 |
China
| Hong Kong Hong Kong Children s Hospital |
Registered patients - Total: 24 - Active: 12 |
| Hong Kong Prince Wales Hospital |
Registered patients - Total: 7 - Active: 0 |
| Hong Kong The University of Hong Kong |
Registered patients - Total: 17 - Active: 0 |
Czech Republic
| Prague Charles University and General University Hospital |
Registered patients - Total: 12 - Active: 11 |
Germany
| Berlin Charité-Universitätsmedizin Berlin |
Registered patients - Total: 0 - Active: 0 |
| Bochum Ruhr-Universität Bochum |
Registered patients - Total: 3 - Active: 2 |
| Göttingen Klinik für Kinder- und Jugendmedizin |
Registered patients - Total: 2 - Active: 2 |
| Hamburg Universitätsklinikum Hamburg-Eppendorf |
Registered patients - Total: 7 - Active: 7 |
| Heidelberg Universitätsklinikum Heidelberg, Zentrum für Kinder- und Jugendmedizin |
Registered patients - Total: 73 - Active: 68 |
| München Kliniken Dritter Orden |
Registered patients - Total: 1 - Active: 1 |
| Transferred patients Transferred patients |
Registered patients - Total: 75 - Active: 71 |
Spain
| Barcelona Hospital Sant Joan de Déu |
Registered patients - Total: 42 - Active: 37 |
| Córdoba Hospital Universitario Reina Sofía |
Registered patients - Total: 9 - Active: 9 |
| Sevilla Hospital Universitario Virgen del Rocío |
Registered patients - Total: 1 - Active: 1 |
France
| Nantes University Hospital of Nantes |
Registered patients - Total: 1 - Active: 1 |
United Kingdom
| London Great Ormond Street Institute of Child Health |
Registered patients - Total: 10 - Active: 10 |
Greece
| Athens Agia Sophia Hospital |
Registered patients - Total: 23 - Active: 23 |
| Thessaloniki Aristotle University of Thessaloniki |
Registered patients - Total: 11 - Active: 7 |
Hungary
| Szeged University of Szeged |
Registered patients - Total: 0 - Active: 0 |
Italy
| Padova Azienda Ospedaliera di Padova |
Registered patients - Total: 15 - Active: 15 |
| Rome Sapienza Università di Roma |
Registered patients - Total: 27 - Active: 27 |
| Torino University of Torino |
Registered patients - Total: 4 - Active: 4 |
Japan
| Tokyo Showa University School of Medicine |
Registered patients - Total: 2 - Active: 2 |
Netherlands
| Nijmegen Radboud universitair medisch centrum |
Registered patients - Total: 5 - Active: 5 |
Norway
| Oslo / Drammen Oslo University Hospital / Drammen Hospital |
Registered patients - Total: 10 - Active: 10 |
Poland
| Warsaw The Institute of Mother and Child |
Registered patients - Total: 2 - Active: 2 |
Serbia
| Belgrade Clinic for Neurology and Psychiatry for Children and Youth |
Registered patients - Total: 5 - Active: 5 |
| Novi Sad Institute for Children and Youth Health Care of Vojvodina |
Registered patients - Total: 4 - Active: 4 |
Singapore
| Singapore National University of Singapore |
Registered patients - Total: 3 - Active: 3 |
Turkey
| Adana Cukurova Üniversitesi |
Registered patients - Total: 9 - Active: 9 |
| Ankara Hacettepe University Ihsan |
Registered patients - Total: 23 - Active: 23 |
| Istanbul Istanbul Üniversitesi Merkez Kampüsü |
Registered patients - Total: 0 - Active: 0 |
Taiwan
| Taichung Taichung Veterans General Hospital |
Registered patients - Total: 0 - Active: 0 |
| Taipei National Taiwan University Children´s Hospital |
Registered patients - Total: 0 - Active: 0 |
United States
| San Diego Rady Children's Hospital San Diego |
Registered patients - Total: 18 - Active: 18 |
| St. Louis Washington University in St Louis |
Registered patients - Total: 12 - Active: 11 |
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